Monday, 12 May 2014

Twas the night before May 12th

Twas the night before May 12th and all through the house not a creature was stirring , not even a mouse...well not technically true, I was tossing and turning and my husband was snoring!

There's never a quiet night in our home, I try to settle into a good nights sleep but it doesn't often work that way. Either I am not able to sleep for ages or I start out well and am awakened by my own aches and pains later in the night. Also of course there are all the toilet visits as well. Then there's my husband and his snoring and his pauses in breathing and his gagging and his sometimes running to the bathroom to get sick.

You see in our house there are 2 people suffering from a Chronic condition.
As you know I have ME and Fibromyalgia but my husband has recently been diagnosed with Severe Obstructive Sleep Apnoea and Fibromyalgia. So as I say 'we're a right pair all together'.

I used to have a carer, that was my husband but at the moment its like the blind leading the blind here in our wee cottage in rural Co. Down. Our son puts up with so much from us,,he's a star and will only be 9 at the end of the month.
All appears to be miserable in our home and at times it can be but that doesn't last long. You see my hubby and I have the ability to trudge through each day. Our faith in God helps us trudge through and every step of the way we enjoy our son's laughter, play with our cats, talk to our hens, breath in fresh air, admire our flowers in our garden and the list goes on.
I also shared in my last post how I split a difficult day up and take one moment at a time. Well my hubby and I do this together every day! we have to we've no choice.

How it works on a practical scale is that we compliment each other, i.e. while hubby irons the school uniform I am trying to put something together for my sons lunch. While my hubby peels the vegetables, I then supervise the cooking times of the steamer and oven, we then  put the dinner out together and our Son gets involved too. So its a real team effort, and it couldn't work any other way.
So for May 12th International ME/FMS Awareness day I hope this has given you an insight into a couple with chronic illnesses persevering together.

And to end on a funny note, my son has just returned from school, it had just poured hailstones and rain and he came in soaked. Daddy was drying his hair and then the cat came in soaked so we decided to dry the cats fur too. So after the fiasco of trying to dry the cat,,we both commented how terrified the cat had been of...the ...could we find the right word,,no; While hubby said 'hoover', I said 'iron'. To put you all at ease it was a hairdryer..we are in stitches right now and life is


  1. Thank you for sharing a glimpse into your life. I like your approach and ability to use humour to soften the edges of life.

    Thank you so much for helping raise awareness by participating in the #May12BlogBomb.
    Over 90 posts resulted, and links to the others can be found here:

    Perhaps we'll try this all again next year!

    1. Defo Sally,,need to do it next year again